The best way to be is to just be yourself. Why try and emulate others you appear to admire? It could very well be that you envy these folks and what worse way to make you ill. Speaking of which, if you already have an acute condition that needs continuous monitoring, perhaps for the rest of your life, there is no need to stop thinking about living. Continue living for today and, by all means, live for tomorrow.
You may not know what tomorrow holds for you, although in your heightened anxiety, you may have suspicions. Not entirely lost, not yet a basket case, you continue to live in hope. There is nothing wrong with this, no matter what others say to the contrary. But of course, you do still need to be realistic about your circumstances and condition. By being yourself, you get to create your own persona.
This is something unique. You can identify yourself to others in the way you present yourself, and in what you choose to wear. While you all have your own style, you can even wear a personalized bracelet which someone is bound to notice. Not that you are hoping to attract notice, but even so, you do not wish to hide under a rock or bury your head in your shell. If you have a condition and you are going to be unwell, not necessarily critically, for the foreseeable future, you can identify yourself necessarily to others by wearing your very own personalized medical id bracelets.
This says a lot about you, right from the very day you were born. There is more than enough data space on your personalized medical ID bracelet in which to store such detailed information.